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Just a personal update

By Jaqui ·
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for all those who remember me here.

couple of years ago now I was diagnosed with C.O.P.D., A very severe case of it.
the definitive test for C.O.P.D. being spirometry, my test results, an fev1 of 29. which means I am only exhaling 29% of the volume inhaled. [ emphysema ]
smoking is the primary cause.

the upshot, can't go out for dinner, the crowded restaurant has me unable to breathe, can't be on a busy street, the exhaust from the cars has me unable to breathe. I wouldn't want to fly anywhere, most likely would have to be hauled off the plane on a stretcher. perfumes, colones, pretty much anything with a scent to it kills my breathing.
every time the weather changes, poor air quality, kills my breathing.

I have spent that last 4 weeks barely able to get out of bed long enough to eat every day, because of breathing difficulties.


already seen 4 specialists, waiting for appointment for a 5th.

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Look after yourself my friend I'll keep it short so as not to tire you out

by HAL 9000 Moderator In reply to Just a personal update
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J-Man!

by CharlieSpencer In reply to Just a personal update

Dude, I'm sorry to hear about your health problems, but delighted to hear from you.

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they have.

by Jaqui In reply to J-Man!

ventalyn, as need [ 6 times a day anyways. every 4 hours ]
atrovent, as needed [ also 6 times a day ]
flowvent twice a day
spiriva, once a day.
[ advair puffer is flowvent and ventalyn in one, sample runs out and going back to the flowvent ]
and:
no caffeinne.
means no coffee, tea, chocolate, colas.
[ ain't gonna happen, me and coffee have WAY to long a relationship ]

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Well after you gave a computer a drink of Coffee

by HAL 9000 Moderator In reply to they have.

It's probably not such a bad thing that you stop drinking it but No Chocolate that is just Cruel and Inhumane Punishment. You realise that you can get the quack who said that Jailed for War Crimes I hope you realize.

Col

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Hey Jaqui!

by wizard57m-cnet Moderator In reply to they have.

Hang tough! I don't know what the Canadian health care system has
available, probably different brands from what we have in USA, but a
couple of newer treatments you could discuss with your doctors include
Dulera and Symbicort. These are similar to Advair...you probably should
ALWAYS keep a Ventolin inhaler handy, it's what we call a "rescue inhaler",
where the Advair, Dulera and Symbicort are for "preventative" treatment.
(Yes, I just gave a bit of advice, my other persona came through...
I'm a pharmacist).
Anyhow, good to see you back! Take care!

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OMG.

by boxfiddler Moderator In reply to they have.

No coffee? :0
Good to see you, Jaqui. :)

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Take Care

by GSG In reply to Just a personal update

We've missed you a lot around here! Sorry to hear about your health issues, and I hope they can figure something out to make things easier for you.

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we got that appointment scheduled.

by Jaqui In reply to Just a personal update

for december 7th.

one interesting thing about the copd, real easy to lose weight with it. even breathing burns 10 times more calories than is normal.

oddly, best resource I have found to learn about it is a website:

http://www.webmd.com/lung/copd/default.htm

but some scary stuff there also

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Well Jaqui if

by HAL 9000 Moderator In reply to we got that appointment s ...

You stop making everyone think you are female it might help a bit too.

Look after yourself as no one else will do it for you.

Col

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Sorry to hear Jacqui

by JamesRL In reply to Just a personal update

But good to hear from you.

It isn't easy, I have had several people in my life with COPD, and it is a hard life. Hopefully you get some relief and they find some options for you.

Take care.

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